Thursday, January 13, 2011

Monkey Chatter

That is what dad is calling the thoughts he has in his racing mind as he lays in the hospital bed drifting in and out of sleep.

Memories of jobs from 40 years ago during his career as an electrical engineer. Talk of Cal Tech and Richard Fineman, his favorite physicist. Recalling his parents who raised him and his sister during the depression.

But the fear is in that monkey chatter as well.

For a man almost 84 who has always been independent and able to care for himself, this is not a fun time. Up until this hospital stay he has lived on his own since my mother’s death thirteen years ago.

A move from the sierra foothills of California to Phildelphia. Closer to a daughter in a town with lots of culture, and sports and family, and great public transportation.

Dad decided for himself that he didn’t need or want to drive anymore. He didn’t like driving, it was stressful and, he began to feel, dangerous.

Before he moved, the lymphoma diagnosis had been made. But it was a very slow growing lymphoma and the treatment was likely worse than the almost non-existent symptoms he had, so there was no treatment, just monitoring.

In the last two months his back pain returned with a vengeance. Along with it came just a general sense of just feeling bad, and then a lack of appetite and who likes to cook when you just aren’t hungry?

But, he’s nearing 84 and the lack of appetite turned into not eating or drinking enough fluids and a major weight loss. The back pain required pain medication, and plenty of it which in turn created its own set of problems. And the previously diagnosed lymphoma turned acute.

The narcotic pain meds meant he could not stay at home alone, they would make even the seasoned addict loopy. Staying with a sister until hospitalization was necessary.

Dad worries about being a burden, about people having to care for him. He feels fear about how his life will look in the immediate future and beyond. There is no explaining that we want to be here with him, that we don’t mind and he shouldn’t either.

But there is still that incessant monkey chatter. Hard to tell if it will be a pleasant memory or reminders of his lack of independence.

He is smart. He knows he needs to have the antibiotics so he doesn’t get pneumonia. He can tell himself that this is temporary. 

It hurts to watch him struggle and worry and hate being here.

I want to tell him, rest dad, tomorrow is another day, it will get better. I wish I knew how to make the monkey chatter stop.

8 comments:

  1. Sorry to hear of your dad's difficulties. I wish I could offer advice, but have none to give. Only sending my good thoughts your way and his.

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  2. Julie, I feel for you...have just gone through a spell when both of my adult "kids," mom and dad, were sick at the same time, he with strep throat and a bad cold and she with bronchitis. You could hear the ocean sloshing in her chest. Dad's okay now, Mom is still white as a sheet, weak and depressed, but much better. (I am just getting over strep and bronchitis, guess they didn't want to discriminate and both gave me something.) Anyway, he's 88 and she's 85 and she has many underlying health conditions and needs lots of special care.

    I do get the feeling that they, too think they are a burden. So far from the truth. All those years they took care of me, as a child and again as an adult with chronic fatigue syndrome and neuromuscular Lyme -- hell, it's a privilege to be able to take care of them.

    It's also a worry, what will one do without the other? They've been married 64 years and love each other madly, though they still fight and argue like cats and dogs. It was great when my brother was able to retire and help out giving them rides to doctor's appointments. Mom hasn't driven in over a year due to worsening eye problems, Dad still drives locally (and is a good driver).

    I wish your dad peace of mind and hope you can find it too. Your post is so bittersweet and conveys such love between you and your father. I hope better days are ahead.

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  3. Julie,

    I read this last night and wanted to comment, but didn't know what to say. I still don't, but I want you to know my thoughts are with you and your family. Your father sounds like an amazing man. I imagine having to ask for help after a lifetime of independence must be incredibly difficult. Keep talking, keep listening, keep strong. XOXO

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  4. What a great thing, to be with your dad while he still has his wits about him. You have lots of time to say "goodbye" and just sit there next to him and hold his hand. My brother just passed at 53 and no one saw it coming, and he died alone, and its' been very sad for the entire family. When you see it coming, it's a lot better. You may want to think about Hospice, which is how my dad made his "exit." He was at home, the bed positioned in the place where he used to sit and read the paper and watch TV. So much easier on everyone than all the cables, beeps and smells of a hospital.

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  5. Could you ask your dad to record/write/tell his life stories? I didn't have time as my dad only had a month when we realized he was sick until he died. If you don't have time to talk old stories or he doesn't want to, what helped my dad the most was to listen to his old music. My sister put on his old records and a peacefulness came over my dad. Music really touches us and it might just stop some of that
    "monkey chatter". I hope something helps.

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  6. Julie,
    I feel for you. Lost my mom some time ago to cancer, but my dad is still with us and will turn 87 this year.
    My husband happens to be a lymphoma survivor. I'd like you to know that there is a fabulous on-line forum with lots of members who can give you guidance in terms of finding all the information you need.
    You didn't say whether your dad had Hodgkins or nonHodgkins, but it doesn't matter. Here is the link to both forums, and you can choose which one you want to visit. You can ask for advice, and you will definitely find someone there who's been in your shoes, w/your dad's particular situation.
    Other than that, all I can do is offer a virtual ((((HUG)))).

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  7. I'm so sorry for you and your family. I will be passing this on to a fellow writer who is going through a similar trial, though she done so in the confines of a hospital for weeks now -- I expect feeling more isolated. She would appreciate reading this and your writing styles are even similar. Thank you for sharing this.

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